{"id":65813,"date":"2021-11-02T12:20:15","date_gmt":"2021-11-02T11:20:15","guid":{"rendered":"https:\/\/www.podunavlje.info\/dir\/?p=65813"},"modified":"2021-11-02T12:20:15","modified_gmt":"2021-11-02T11:20:15","slug":"kafana-kviz-humanitarna-akcija-smederevaca-za-malu-vanju","status":"publish","type":"post","link":"https:\/\/www.podunavlje.info\/dir\/2021\/11\/02\/kafana-kviz-humanitarna-akcija-smederevaca-za-malu-vanju\/","title":{"rendered":"Kafana kviz \u2013 humanitarna akcija Smederevaca za malu Vanju"},"content":{"rendered":"

SMEDEREVO, 2. novembar 2021 \u2013 Grupa mladih Smederevaca organizuje danas u jednom ugostiteljskom objektu Kafana kviz \u2013 humanitarnu akciju za malu Vanju, bebu ro\u0111enu 2021. godine, koja je obolela od retke neuromi\u0161i\u0107ne bolesti.<\/p>\n

Genetska analiza je potvrdila sumnje neurologa, da se radi o retkoj neuromi\u0161i\u0107noj bolesti SMA1 (Spinalna mi\u0161i\u0107na atrofija tip1). Re\u010d je o izuzetno te\u0161koj i progresivnoj bolesti koja \u010desto ima smrtni ishod.\u00a0Bolest je posledica mutacije gena i manifestuje se gubitkom osnovnih \u017eivotnih funkcija kao \u0161to su hodanje, varenje hrane, gutanje i disanje.<\/p>\n

Terapija postoji,\u00a0ali\u00a0 zbog same cene\u00a0Vanjina porodica nije u mogu\u0107nosti da je\u00a0priu\u0161ti\u00a0 i pomogne svom detetu, stoga se obra\u0107aju svim dobrim i humanim ljudima da im pomognu kako bi njihovo dete primilo terapiju i time usporili napredovanje bolesti. Vanji su sredstva potrebna za terapiju Zolgensma i za putne tro\u0161kove i sme\u0161taj.<\/p>\n

Smederevci koji se takmi\u010de u kvizu znanja obavezni su da u\u010de\u0161\u0107e potvrde slanjem SMS poruke na 3030, u pitanju je jednokratni iznos od 200 dinara. Za kviz, koji \u0107e trajati ne du\u017ee od tri sata, do sada je prijavljeno sedam ekipa, do pet \u010dlanova po ekipi. Oni su pozvali sugra\u0111ane da im se pridru\u017ee u ovoj akciji i po\u0161alju SMS poruku za malu Vanju.<\/p>\n","protected":false},"excerpt":{"rendered":"

SMEDEREVO, 2. novembar 2021 \u2013 Grupa mladih Smederevaca organizuje danas u jednom ugostiteljskom objektu Kafana kviz \u2013 humanitarnu akciju za malu Vanju, bebu ro\u0111enu 2021. godine, koja je obolela od retke neuromi\u0161i\u0107ne bolesti. Genetska analiza je potvrdila sumnje neurologa, da se radi o retkoj neuromi\u0161i\u0107noj bolesti SMA1 (Spinalna mi\u0161i\u0107na atrofija tip1). Re\u010d je o izuzetno […]<\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[43,7222,75],"tags":[506,15083,791],"class_list":["post-65813","post","type-post","status-publish","format-standard","hentry","category-drustvo","category-najnovije","category-smederevo","tag-humanitarna-akcija","tag-kafana-kviz","tag-smederevci"],"yoast_head":"\nKafana kviz \u2013 humanitarna akcija Smederevaca za malu Vanju -<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.podunavlje.info\/dir\/2021\/11\/02\/kafana-kviz-humanitarna-akcija-smederevaca-za-malu-vanju\/\" \/>\n<meta property=\"og:locale\" content=\"sr_RS\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Kafana kviz \u2013 humanitarna akcija Smederevaca za malu Vanju -\" \/>\n<meta property=\"og:description\" content=\"SMEDEREVO, 2. novembar 2021 \u2013 Grupa mladih Smederevaca organizuje danas u jednom ugostiteljskom objektu Kafana kviz \u2013 humanitarnu akciju za malu Vanju, bebu ro\u0111enu 2021. godine, koja je obolela od retke neuromi\u0161i\u0107ne bolesti. Genetska analiza je potvrdila sumnje neurologa, da se radi o retkoj neuromi\u0161i\u0107noj bolesti SMA1 (Spinalna mi\u0161i\u0107na atrofija tip1). 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